This is such a great article! Thanks for an accurate portrayal of how disabling this disease can be. This was a great quote. The illness is characterized by post-exertional malaise, which is a severe worsening of symptoms after even minimal exertion. For example, the exertion can be a minor physical activity, such as walking; or a mental activity, like reading or writing. As Dr. Davis pointed out, one of the most frustrating things about having this disease is that people assume its just about being tired all the time.
Thanks also to Stefanie for being willing to share her story. As a patient I find that its a strange mix of heartbreaking and encouraging to read about the struggle of others. Its so true that we patients just want to be heard, respected, and helped.