Rebecca, that was the most wonderful life changing article I have yet to see. I have a story, if I write it down who would I send it to? Also why cant the millions of us become activists. We could not be available for the millions missing weekend, but we could all make telephone calls on a certain day to certain companies and shut them down. The CDC the AMA, certain congressman, pharmaceutical companies The greedy pigs. They take out money for everything else under the sun and chargers $1 million well when we really need medication where are they. They are letting us die at home one cell at a time. My brain fog, I didnt even know what that meant before, has gotten so bad that I feel as if Im stunned and all the sudden Im thinking in slow motion hearing people in slow-motion me acting in slow-motion. would you like to help organize a day or two of telephone calling? And how would we reach the most amount of people with our illnesses? I posted your article plus I said some things before it. Friends responded and Maddie said that I made them cry. That certainly had not been my intent but our stories are heartbreaking so we have to make more noise. I am certainly ready to do that. I have good hours and bad hours. I even have a few good days in a row sometimes...but in any case how do we organize ourselves to be activists enough to make a huge splash? Gail Kelly on FB
Gail Kelly- This is my first attempt to add a comment and for some reason I am failing. Bottom line is that I would like to make contact with an MEFS group swell I have someone to talk to about what we are all going through. Id like to be able to read Rebeccas blog. Im just going to send this short statement is everything else I have written is not going through.
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