I am not surprised our SSA is so ignorant to the validity of Young onset Parkinson's but I am outraged just the same.
We talk about awareness and finding a cure but we cannot ignore those who are so physically devastated by YOPD that they can no longer work and provide for themselves financially or their families. How can we educate the public to raise awareness and funds when our own government agency designed to assist us after our years in the work force does not even recognize that you do not have to be elderly to be physically unable to work.
I write this shortly after taking a handful of pills that I need just to start my day otherwise I would not be able to perform my job (which is not physically demanding). I spend a lot of time saying Focus on a Cure but we need to widen our Focus and also Focus on fighting for those who while waiting for that cure are being financially cut off by the SSA.
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